Current Follow-Up Research Opportunities
The LIVING Study
Long-term Impact and Value of Infant Genomic Sequencing
Who can join: Families who enrolled in the BabySeq1 Project from 2014-2019
Goal: To learn about the impacts of newborn sequencing as children grow up (10 years after results disclosure)
The SERVICE Study
Who can join: Families who joined the BabySeq2 Project from 2023 - 2025 AND received a positive result from genetic testing
Goal: To learn about how families access services after genetic testing
The Lifetime Genome Study
Who can join: Families who joined the BabySeq1 Project or BabySeq2 Project
Goal: This study is part of a broader project looking at the ethical, legal, and social questions around using genomic information across a person's lifetime.