Current Follow-Up Research Opportunities

  • The LIVING Study

    Long-term Impact and Value of Infant Genomic Sequencing

    Who can join: Participants who enrolled in the BabySeq1 Project from 2014-2019

    Goal: To learn about the impacts of newborn sequencing as children grow up (10 years after results disclosure)

    Learn more

  • The SERVICE Study

    Who can join: Families who joined the BabySeq2 Project from 2023 - 2025 AND received a positive result from genetic testing

    Goal: To learn about how families access services after genetic testing

    Contact the SERVICE team